MS Scars 2 Stars

Feeling Discouraged? Check this out!

2011-08-08T09:12:00.000-07:00

MUST READ BOOK

Find the Upside of the Down Times:

How to Turn Your Worst Experiences Into Your Best Opportunities

"I enjoyed this book tremendously. It grabbed me from the first chapter and got me to think in ways that have changed my life for the better. We all have different sides of life that we have to deal with, whether having a illness, being a caregiver, or a spouse or corporate employee. Your book touches others in all these areas because you share so many different sides of yourself. I know your book will be a great help to a lot of people. My husband's got to read this."

Paula Joiner, Editor of the MS Lone Star Classifieds

Whey! IT'S EVEN HOTTER IN AUGUST

2011-08-01T08:02:00.000-07:00

Whew It's Still Hot! - Keep Cool in August With These New Tips

Water - Not Just For Drinking

If you are out and about in public zoos or events look for misting stations. These are area set up with fans and water misting blowers that are very refreshing in the sweltering heat.

Remember Hot Air Raises

Well insulated attics keep heat out. Look for Government Energy Savers Rebates to save money on improvements.
Radiant Foil Energy Barriers - It's worth checking into this type of system. It can be a do it yourself installation or check for a reputable contractor in your area. Make sure it is Radiant Barrier Foil and that it's installed properly.

Foods - That are not heavy or hearty

Graze by eating smaller, lighter meals more often, like salads and chilled soups and desserts. Keep in mind it takes energy for the body to digest the food that is eaten, so keep meals cool, and in smaller portions.

Keep lotions or body creams in the refrigerator

Applying lotions or creams that have been keep stored in refrigerator refreshes the skin and leaves a nice cooling sensation.
Chilled bottles of Witch Hazel or After-shave Lotion applied after shaving is very helpful in giving a cool refreshing finish.

If you don't have air-conditioning, arrange to spend at least parts of the day in a shopping mall, public library, movie theater, or other public space that is cool. Many cities have cooling centers that are open to the public on sweltering days. The indoor play areas at McDonalds are great for small children.

Finally stay in the shade and wear light colored natural fiber clothing.

Seersucker Suites are actually cooler because of the pucker design of the fabric, which catches the air, and is made of cotton. These suites may be worn by both men and women for business/dress attire.
Also, take cues from the style apparel worn by people living in warmer climates. These items of clothing are usually made from light-weight, gauzy fabric into loose fitting apparel, so air circulates through keeping the body cooler.

You may have other tips that you would like to share. Please visit our Forum "Whew It's Hot" to leave your favorite tips. Keep cool!

Why Stay Home, Why Not Fly? Part 2

2011-06-13T15:11:00.000-07:00

I met an interesting elderly women on a resent flight through Charlotte. She was traveling alone and with an oxygen supply. I noticed her because we were both in the early boarding area of the airline terminal. She shared with me that she had not been out of her house in years. I immediately imagined that this must have been a major event for her to attempt to make her first outing a flight across country, perhaps a death in the family. But she soon added that it was her granddaughter's birthday, and she wasn't going to miss another one. That made me think how little time we have to spend with love ones since the reason for my fight was to be with a family member in hospice.
The fear of flying for some is very real and difficult if not impossible but, overcoming the fear of being in a situation where you are unable to take care of yourself takes guts. I admire this lady's resolve that at her age and condition nothing was going to stop her from spending time with family.

THINK ABOUT IT.

WHY STAY HOME? - WHY NOT FLY?

2011-05-05T06:13:00.000-07:00

Here are some helpful tips if you have not flown since MS affected your mobility:

Tips on booking a flight with airlines

If you book your flights online; first check carefully for online booking "Special Needs" registration forms. This is a check list of your needs and ability. The following are just a few examples:

Are you in a wheelchair?
Are you visually or hearing impaired?
Will you need assistance boarding the plane?

If you do not feel confident that the form addressed your specific needs, call the airline reservations and ask for assistance in filling out the form or making additional notations. Some airlines charge additional for booking the flight for you, verify that you are not being charged for this assistance. Let the airline's Flight-Reservationist know you will book your flight online, however, you want to confirm the “special needs” accommodations are available and will appear on your ticket.

(Special note: The Airline Flight-reservationists are professionals and if you are courteous, they can be very helpful and informative with additional information about the airline and the airport.)

Tips on Airports

If you are traveling alone, it is a good idea to have you your tickets with you in an accessible location on you when you arrive at the airport. If you are unfamiliar with the airport get directions from your airline or airport for the terminal, departing locations, and/or drop-off.

If you are driving locate parking and shuttle transportation from parking lot to your terminal. Remember, you have to handle you luggage during this stage. I would recommend a drop off at the departure for your airline. This is sometimes conveniently located at curbside where the Skycap can assist you with your needs. (Hint: Have cash for tips) Some airlines offer curbside check-in at some airports.

Good Skycaps can set the tone for your flight. (At this point, if you are in a wheelchair or if you need one, ask for the things you need to make your flight as comfortable as possible. The Skycap knows how to get you through baggage and wheelchair/walker check-in, security check and to terminal loading station quickly. (Remember, your tickets have the notation, SPECIAL NEEDS)

Planning ahead when you have a disability like MS

This is the most important part of the process. Some of the things to remember at this stage are as follows:

Do you need medication to fly due to fear of flying? If so how does that medication affect your cognitive abilities and mobility? Also, it would be a wise choice to travel with a companion if you do take medication.
What time is your flight? Booking flights at rush hour is not a good idea. However, soon after the peak times are the best times to book, airport workers have more time to assist you.
How are you dressed? Everyone is aware of airport security checks and luggage restrictions. But if you are not, you can find this information online under airport security guidelines. Here is a link to a helpful site - http://www.ifly.com/airport-security
Bladder control issues: Talk with you doctor and experiment or rehearse with using various kinds of products so that you will fill comfortable for the length of time needed to reach your destination or to be able to access bathrooms.
Many people worry about traveling with medication that needs to be kept cold or cool. There are ice packs that are made for this purpose. Check with your pharmacy. (Pack it in your luggage or pre-check with security if you use a carry-on only.
Airport transport between terminals on connecting flights can be challenging. But if you are flying on a budget can be a necessity. So, when you are booking your flight – check airport for terminal locations and transport assistance. A slightly longer layover may be less stressful. (Note: Airport transport worker are very helpful in getting you on and off the shuttle vehicle. As well as in and out of the wheelchair.)
Once you reach your destination and you have claimed your baggage, again look for the Skycap of Curbside Assistant. They may be harder to find leaving the airport. So, make sure to request assistance as soon as possible upon de-boarding the plane.
If you are visiting a city alone call the City’s Chamber of Commerce Dept. or Hospitality Dept. for information on accessibility and transportation. Also, remember to check the local National Multiple Sclerosis Society office for information or tips on city.

BIG EVENT THIS MONTH

2011-04-06T10:54:00.000-07:00

BP MS 150 April 16th - 17th 2011 Houston to Austin Bike Ride

Bike MS Broadcast PSA 30 second - National MS Society

George Accepted The Challenge

Click Here.

Our goal is to find a cure for MS.

George Carter has accepted the challenge raising over $200,000 over 10 years. He has participated in over 18 Bike Rides.

Bike Riders have raised Millions of dollars for MS Research.

We are their Pedal Partners. Help us, help them reach our goal!

Motion Therapeutics

2011-03-17T10:59:00.000-07:00

Check out this video of an interesting product that appears to solve the problem of balance and movement with MS .

MS Awareness 2011 News

2011-03-15T11:34:00.000-07:00

The National Multiple Sclerosis Society invites you to share by posting your thoughts on the

MS = Board celebrating MS Awareness Week March 14h - 20th

"People are coming together to share, educate and build awareness about what MS means to them." Read short reflections of others living with MS and be encouraged and inspired.

Please click here to participate and to do your part to help raise awareness!

Don't forget to ware orange this week!

MS and Good Health - FOOD FOR THOUGHT

2011-01-26T08:12:00.000-08:00

Is it possible to have Multiple Sclerosis and be healthy? Apparently, the answer to this question is as individual as the symptoms of MS are to each person.
Living in a healthy state of being should be the goal for each individual. A person with MS should strive to find the best level of health or wellness for their state or stage of the condition. One of the ways to achieve that goal is through our diets. We are what we eat. However, there are other components to a healthy diet, which should be address. Are you taking additional supplements with your healthy diet? According to the experts, no matter how well balanced, organic and nutritious the meal, we need additional supplements to achieve the optimum healing benefits from food without over-eating. One might argue, "I am a juicer." Great, but how many of those precious vitamins are left in the bulk fiber by-product thrown away by juicing? Also, we hear about the effects of organic vs non-organic and GM (genetically modified) Foods vs non-GMO or Raw Food materials in our diet, which also effects the nutritional value we receive from what we eat.
I am now learning more about "Transforming your health with the power of living nutrients," in the book, 'Raw Truth', by Jordan Rubin. Jordan Rubin is also, the Publisher of the magazine, 'Extraordinary Health', which can be fount in health food stores free of charge. 'Extraordinary Health' is published by Garden of Life, LLC, located on the web at http://www.gardenoflife.com. There is lots of information to digest in this magazine or should I say, for your digestion?
People with MS may not have a lot to say about how this disease will affect them but we can control what actions we will take to affect the effects of Multiple Sclerosis. This is just a little FOOD FOR THOUGHT.

Also, as always check with your neurologist before taking any supplements.

MS Diet - You Have Got to Eat!

2011-01-18T10:50:00.000-08:00

The MS Diet is still going strong. I would like to share a Chicken Soup recipe that I prepared. Great for this time of year. I also enjoyed Blue Diamond Gluten Free Crackers with this in the Ranch Flavor.
This takes about 2 hours from start to finish with the prep and simmer time included.

3 Boneless Skinless Chicken Breast
32 oz. Free Range Chicken Broth Low Salt
4 Tables Olive Oil
2 Knorr Chipotle Mini Cubes
1 cup Brown Rice
2 Small Shollot

3 Stalks of Celery ( 2 cups)
1 Small bag of Baby Carrots
3 Ears of Corn (cut into 6 or more pieces)
1 Green Bell Pepper
1 Red Bell Pepper
Mrs Dash Original Seasoning or Garlic

Garnish:
2 Roma Tomatoes
1 Large Avocado
Cilantro
1/2 Red Onion

Directions for Prep: In a large soup pot, saute shallots, celery, bell peppers in olive oil until translucent. Cut chicken breasts into bite size pieces and season with Mrs Dash, (I use Original). Add chicken to vegetables and cook until lightly brown and done. Next add carrots and corn. Continue to cook on medium high heat 2 - 3 minutes more. Add 32 oz chicken broth and Chipotle seasoning cubes, simmer for 35 - 40 minutes.
Then, add 1 cup uncooked brown rice and 2 cups additional liquid (water). Simmer at high heat for additional 40 minutes or until rice is cooked.

Garnish:
Mince red onion and cilantro combine with cut and seeds removed tomatoes. You can chop by hand or use food processor. Cut or chop avocados into large bit size pieces or slices. Use as a garnish for each of a bowl of soup.

Hope you enjoy this recipe as much as I did creating, cooking and eating it!

MS Diet and Moderation

2011-01-10T13:51:00.000-08:00

The MS diet is still a way of life for me. I have now found which foods I have sensitivity to in my diet. Most of what I can eat without any worry is chicken breast, fish and/or vegetables. These foods must be prepared carefully with natural seasoning and olive oil or one of the allowed oils, if necessary. I do eat rice, oatmeal, grits, corn products, no additives no preservatives. All types of potatoes are still in my diet, mostly baked. As well as most raw fruits and nuts. I am trying to include different types of fruits and vegetables to see if there is a noticeable improvement. During the winter season the choices are fewer. The hardest part of this diet is gluten or dairy products restrictions.
The one area to watch is sugar from fruit drinks. Items like orange juice and apple juice even if they are organic, contain a lot of sugar. It is a good idea to pay close attention to the labels. A good juicer may be the solution to the problem, any suggestions? Also, I am planning to refine my diet to include more homemade gluten free breads instead of store bought products. A bread machine might make baking gluten free products somewhat easier. I have purchased a variety of gluten free grains for baking bread and cakes. They can be found in most grocery stores baking isles. Eggs have also been excluded from the MS Diet. Powdered egg substitute does work well as a replacement.

This year the exercise part of this project will be in the forefront as well. Floor exercises like simple Dahn Yoga floor stretches are great. I look forward to making progress in this area. As the year progresses there will be other new changes- I'll keep you posted.

Have I Had MS All My Life?

2010-12-15T17:23:00.000-08:00

I often wonder when MS first came into my life? Maybe it first showed up on that day, I felt too tired as a teen to continue band practice. Or maybe it was the piano lesson that I just couldn't quite finish learning. Every teenager feels stress growing up. Maybe, my stress over all of this and forgotten or lost books were actually MS moments!

But, I'm not angry, after all, it could have been worse. OK, I'm lying, I am angry! But, getting "hot under the collar", is not healthy for a person with MS. Instead, it would be better to wrap a Cooling Cloth around my neck and stay cool and calm. I admonish myself, don't get sore about what has happened in life. However, I realize having MS fulfills the definition of the word sore.

: causing pain or distress a sore subject b: painfully sensitive
: attended by difficulties, hardship, or exertion
: angry, irked, a sore loser

MS is a painful, tender, sensitive, irritated, infection or affliction" of the central nervous system. Yes, having MS gets on my nerves! How ironic one of the main symptoms of MS is numbness, as well as, pain and sensitivity.

Nevertheless, I realize, I do not have to feel angry about what has happened, it is a choice. I will choose to take a deep breath and slowly let it out, releasing all soreness and hurt inside of me. Then I can say to myself, "Let it be. MS has no control over me".

The MS Recovery Diet Continues

2010-12-14T07:53:00.000-08:00

I am still on the MS Recovery Diet. I have loss about 10 pounds. I am pleased that I am losing weight. However, I am concerned about losing muscle. I am not an exerciser but I think the time has come to move forward with that requisite to achieve total recovery. The diet is helping with the food sensitivities and digestion. Now it is time to start retraining my body to function physically. I can walk with a walker. I do use a power chair when I go on outings that require walking distances that I feel would be too tiring or time consuming. I walk at a very slow pace concentrating with each step. My right leg and foot are difficult to move with each step forward. The command to the brain is a mental chant; lift, kick, step forward and shift. My left leg moves normally for the most part. However, the average person has taken three steps to my one, without thinking! I have been told recently that I am walking faster and my posture is better. I think my posture may have improved.

In the book, "The MS Recovery Diet", by Ann D Sawyer and Judith E. Bachrach, there is a section on the importance of exercising. I highly recommend that you read this book. There is a lot of valuable information on MS and exercise that is addressed. But for me the first exercise, to roll over in bed, meant the most. Because, at the worst and most difficult days of MS, that was an impossibility. The exercise is compared to a baby's first steps with basic movements, which seems logical. We all have seen a baby turns his head, focuses and then lifting the shoulders and turning it's body rolls over on the tummy and vice versa. But, remember these are exercises, so use caution and start with just a few attempts. Then gradually increase as you become more comfortable. Another word of caution, if you are on the bed, be sure you have room to roll and not fall off the bed. You may need someone to watch you at first. If no one is around, set up a barrier on the edge of the mattress or bed.
So, let's get rolling! Follow my progress, the goal is to crawl by the end of the month.

Managing Stress Without feeling like Scrooge

2010-12-13T14:33:00.000-08:00

It is hard to gear up for all the extra activities during the Holiday Season and manage MS fatigue. Planning is the key to success in this quest.

Use every tool available like:

Online shopping can be a great time saver.

Use your own computer or a computer at the library by signing in with your internet email address and account provider

Save energy and stress by avoiding crowds and shopping at your own pace.

Save money. You can print coupons for in-store and online shopping

Be sure to use Retail Stores discount sales codes when available at check out with online shopping

Retailers often offer Specials to online shoppers that are not available in stores

Look for Free Shipping Offers

Saving money and staying within your budget, no matter how small, will empower you and give you peace by narrowing your choices. A well designed shopping plan stimulates creativity. The people on your list will appreciate and remember the thoughtful, meaningful gift.

Follow us on Our Blog, MS Scars 2 Stars, Twitter and Facebook the next few days. We will post ideas and money saving and easy to do tips!

Merry Christmas

Paula Joiner

Almost Time to Sum Up the Year

2010-12-02T16:54:00.000-08:00

Gee, can one believe that it's almost year end? I have tried a lot of different things this year to stay ahead of the MS Monster. I am still on the diet. I can say it has made a difference in the way I feel. Thinking of ways to enjoy food without eating from the forbidden fruits was extremely challenging. I have become a much better cook. I take time to add spices and enhance the flavor of whatever I am preparing. I have also lost weight, although not intentionally but by not eating fast foods, sugar, dairy and saturated fats. Great bonus to trying to heal yourself naturally. Over the holidays, I ate a lot of food. Instead of feeling bloated and uncomfortable I was just satisfied, yet full. I know if you looked at my menu, you probably wonder how. Well, what you don't see on the menu are the ingredients that are added to each item to enhance the flavor. For example, the turkey was a free range boneless turkey breast. I stuffed it with a rice dressing made with 2 types of mushrooms and brown rice. Lots of other ingredients like poultry seasoning, and the usual vegetable additions celery, onion, garlic. However, it needed the holiday touch, so in goes the pecans, golden raisins and gluten free bread. There is more to this recipe, like chicken stock, salt and pepper and, olive oil for sauteing. There is a recipe for the rice dressing that I changed to suit my diet. Another example, use cornstarch to thicken the gravy instead of flour.
The holidays are filled with tempting dinner parties and festive occasions. Let me encourage you if you are on the diet to stick with it. Just be creative and remember to enjoy the things you can have fully.

Following the MS Diet

2010-11-22T18:26:00.000-08:00

I am now entering the 4th week of the diet. There is a lot to learn about this new way of eating, it is a life style change as well. Eating fast food is not an option, meals preparation takes time and planning. The planning start with a grocery list. A well stocked pantry is a must have. Fruits, vegetables, nuts, fish and grain feed lean meats or wild game are all OK on the diet. As I lean more about what I can and can't have, I discover there is nothing like the first few weeks or months of this diet. In order to find your food sensitivities you must remove all of the suggested items from your diet. Eggs, (all products containing eggs), gluten ( all products containing flour), legumes (all vegetables in a pod and this includes soy bean products), dairy, (all animal milks and their by products), yeast, and sugar.
I have also learned that keeping a detailed journal of what you eat is very important. The symptom or reactions to the foods that you eat should be recorded. This also requires planning. Make sure to have a small note book for logging your entries. I am sure a look back by date will be interesting as time goes by.
The holidays pose a special problem. It seems as though we have conditioned ourselves to believe that over indulgence and overeating go hand in hand with holiday celebrations. Again, be prepared with array of the healthy choices that are available to you. Like Nuts taste extra special when coated with honey. For a spicy change use a little oil and chili powder blend to taste. No matter what your favorite flavor, it can be added to the permitted mixed nuts and seeds. Be sure to add in dried fruit as well. Yum!
Dr Swank's book has some great recipes but use caution, not all the recipes apply to this strict start-up. As time goes by the other foods can be added if tolerated. So, be creative and enjoy all the foods you can have.

THANKSGIVING DINNER MENU

Butternut Squash Soup Served w/Brown Rice or Popcorn
Roasted Turkey Breast
Baked Sweet Potato Casserole Topped with Pecans
Greens (Mustard and Collard)
Roasted Corn on the Cob

DESSERT
Baked Apple Crisp w/ Frozen Vanilla Coconut Milk - I'm sure the Pilgrims did not have a la mode desserts!
Please share with me your ideas. I would love to hear them.

Where is the Encouragement?

2010-11-06T17:12:00.000-07:00

Has anyone ever noticed that encouragement is a rare commodity? There is something to be said about the person who has managed to incorporate this virtue into their daily lives. I know, I would like to know the person that unsolicited will give positive feedback. If you have to ask, then you are only getting an agreement or confirmation on what you already think. But if the complement is given with no strings attached, then it is an encouragement.

Encouragement gives hope to someone. When someone says, 'you're not alone' or 'I know how you must feel', with sincerity; it is a perfect gift. Especially, when the encouragement is given with no expectations of receiving an encouragement, in return. Encouragements are not always spoken, are they? An encouragement can be a kind gesture, a charitable action that gives someone support. The "like" item is one of my favorite things on Facebook, it gives a thumbs up to others. On Twitter it is the re-tweet feature that gives validation to others. Blogging has a special kind of community of people who follow you. I think another lost kind of encouragement is the welcome to the neighborhood. It is so easy to connect with others in the social media world, I think we sometimes forget to add, nice to meet you.

In the future, I will look for opportunities to encourage others.

MS and the Diet

2010-11-03T07:57:00.000-07:00

This is the latest of my 'The Diet and MS' adventure.

I am currently in my third week of the diet. Today is not a particularly good or bad day. I feel at a loss from the high of caffeine and sugar. I can say it is not a craving, but it is more or less an absence of the familiar practice, of having a cup of hot, sweet and creamy coffee. I thought that I would miss bread more, but that is not much of an issue because the starch of bread can be replaced with rice or potatoes. EGGS are a real significant problem! I got an egg substitute, and I can not wait to bake with it. There are lots of gluten free bread mixes, but most would require an egg or two. Therefore, often there is a solution to the problem, if you keep an open mind. I look forward to testing the egg substitute.

The information on 'The Diet and MS' seems to be an extremely hot topic for discussion. The National Multiple Sclerosis posted this Clinical Trial Alert recently on 'The Diet and MS' on their website Research section, MS Trial Alert, "MS Trial Alert: Investigators in Oregon Recruiting People with Relapsing MS for Study of Effects of Low-fat Diet on MS Disease Activity; Travel Costs Covered" posted on Oct 29, 2010. Read more about this study in the following link: http://www.nationalmssociety.org/news/news-detail/index.aspx?nid=4046
I am thrilled that this type of research is being proposed. This is a random assigned, rigorously controlled, clinical trial study of the effects of a Low-Fat Diet on people with Relapsing MS. I am not sure if it is as restrictive as the diet that I am on.

Please let me know what you think about 'The Diet and MS'.

I Can Make A Difference in My MS Symptoms

2010-10-28T05:36:00.000-07:00

Multiple Sclerosis is an extraordinarily mysterious, painful and debilitating disease. The symptoms vary from person to person like a Chameleon. I recently discovered, you can live free from MS symptoms.

Maybe it was some kind of exercise routine, that I would not have the strength or stamina to do. (Read my earlier blog on Yoga). Oh, don't mis-understand, exercise actually has helped me. However, it is extremely difficult to perform when you are fighting MS at the same time. MS is not something that you can turn on or off like a light-switch, then act like a Gazelle. I have always wondered how many seated arm curls must be done to walk across the floor, of course, you're strengthening your core! Funny how the MS seems to have blocked that from my memory - was that 10 or 11? Oops, lost count, and I have to remember to breathe! Is that in through the nose out through the mouth or was it the other way? Oh well, it doesn't matter, whatever I must do, I'll do it and give it my all! What would you give to live free from MS symptoms?

What is this new, exciting and profound challenge? The answer was not new, but it was profound and tremendously challenging yet, it was so easy; CHANGE YOUR DIET! That was a surprise to me. I have been on all types of diets: Weight Watcher, California, Atkins and Oprah's just to name a few, but of course, they were just to lose weight. This diet does not fall under the weight lost segment it is a therapeutic regimen. As I am writing about my experiences with this diet, you will see why I use the term regimen. This is a coherent plan for therapy, a series of steps to be carried out to achieve the goal of living a life free of MS symptoms.

How does it work or better yet, does it work? I don't know I am only into my 2nd week. The outline for this diet is in "The MS Recovery Diet", by Ann Sawyer and Judith Bachrach. I have had an ELISA food allergy analysis to identify food allergies and sensitivities and am waiting for the results. I can tell you that I have noticed a difference in the way I feel, already. My blood pressure has returned to a normal range, although I still take medication for blood pressure/hypertension. I have noticed a difference in my feet not swelling as much even when I sit at the computer for hours.. So, maybe I am seeing results already. However, I want to see a lot more results from the aforementioned for all the dietary changes that I have had to do.

On the list, of the foods that I have eliminated from my diet before the ELISA test results are:

Sugars, gluten (all gluten grains), dairy products, legume (soy, green beans, peanuts, peas), eggs, saturated fats and yeast. I recently found out that I needed to include oatmeal to the grains that I cannot eat, from an allergic reaction. I have noticed that my body reacts with more sensitivity to anything that I eat. It is either yes, that's OK or no, and you are going to need Benadryl. I am not quite at he Epinephrine shot, yet.

So, I can tell you that my body is paying attention to the difficult diet. Again, as I posed the question before - What would you do or give to have no MS symptoms.

MS Mean Spirited

2010-10-18T13:34:00.000-07:00

MS is the excepted abbreviation for Multiple Sclerosis. However, sometimes those around us may think that it stands for something more like, Mean Spirited.

I recently attended a beautiful luncheon that was provided for those with Multiple Sclerosis. I have to admit I rarely attend these types of events alone but, I had an incentive. Not only was the luncheon held in one of my favorite restaurants in town but I would also have a new crowd that I could promote my MS website to. How disingenuous of me I must confess, not to first think of the topic for discussion or of meeting other MS survivors and friends. And once again, I should have listened to that small voice that warned that my head and heart were not in agreement. Never the less, I put on my (I can do this game face) and forged ahead. The "I can do it on my own" determined, energetic, goal oriented attitude can seem aggressive and self-assertive, at times to others. The not being intimidated by your circumstances attitude can unknowingly give others the impression of being mean spirited, OUCH. Eventhough, the stress of coordinating and accomplishing a solo outing, if you have a disability can be overwhelming and daunting, especially if you usually have a companion to assist you. So we mask it with a I'm tough, I can take care of myself persona which can seem harsh. I so admire people who have mastered this needed self confidence yet remain soft and gentile while living with a disability.

Much too often I have noticed that whether it is pain, disability, emotional lack of self confidence/esteem or just having a bad MS day we can sometimes be a little discourteous to others around us. We often overlook their need for recognition, patience and understanding even though they are not physically challenged.

It is wise for us to remember the boomerang effect; you sometimes get back what you send out. We may think that the "tough guy or gal" attitude is for our own self preservation and protection. But, by being guarded you may miss an opportunity to connect with someone else in an authentic way to gain pleasant memories if not friendships.

What are some of your thoughts about this complex mental state of beliefs and dispositions that you have observed with a MS attitude?

Today's Food For Thought

2010-09-14T09:43:00.000-07:00

I am sure you know that the statement, "As a man thinks so is he or she", is true. Yes, I agree in positive thoughts about yourself and circumstances are good and is the way we should think. But, I do not agree that this is the way to acquire riches and to fulfill all your desires. In my affirmations and prayers, I realized that the outcome is not up to me. I am not in Control, God is. I think that we often discount our blessings and overlook God's goodness to us now. Just in having this world still in it's proper place in the universe, the beauty of this day, a smile on someone elses face, is of far greater value in comparison to my own wants and desires.

Sure, I think that I would be happier having a lot more money and a lot more things. But will I have the time to acquire them and health and strength to enjoy them? Since, tomorrow is not promised to me, I must live my life one day at a time. Maybe its not about me or my and mine or more. This I am sure about, what wisdom and knowledge teaches us about giving and sharing is true; I can make my life a little happier and richer just by being generous with the things I have now!

MS Society of Canada - News in Research on A Home-Based Walking Program Using Rhythmic Auditory Stimulation Improves Gait Performance in Patients With Multiple Sclerosis: A Pilot Study

2010-08-17T08:00:00.000-07:00

MS Society of Canada - News in Research
IF YOU CAN NOT SEE THE LINKS BELOW THEY ARE THE SONG SAMPLES IN QUOTES
This report is great NEWS because "I Like To Move It"

I am so excited by this report - " I feel Like Dancing"

and I'm "Staying Alive" and this is good NEWS!

NEW - MS PRAYER CORNER

2010-08-09T10:01:00.000-07:00

MS Lone Star Classified has a place to post your prayer requests. Please follow the rules. All requests should be for MS Survivors and their families.

MEMORIES - AT THE GAME

2010-08-05T11:20:00.000-07:00

I would like to Blog a story about living my life, with MS, for over 20 years.

In 1993, I had kids in high school. Like most athletic high school boys they played sports, in Texas, that's mostly football. I remember, it was a Homecoming game night and it was pretty special for one of my sons. He was a senior playing on the Varsity Team that year! His position was, starting offensive lineman, center #55. I had looked forward to this, since I had taken him to all his Little League games and practices, from the age of 10. I was determined, I was not going to miss this game for the world!
But, as you well know, having MS and being in a football stadium, full of screaming kids and loud high school bands, is not compatible. Nor, at that time, very wheelchair accessible. So, my husband rolled me out on the football field, home team sidelines, in my wheelchair. But, they would not allow him to stay with me. I remember wondering, "How do I look, do I look OK?" I am wearing the school colors of black and gold, sporting and supporting. I remember thinking, I'm sitting out here, in my chair all alone, all the other people are up in the stands, including my husband! I remember thinking, shoots, I hope I don't have to go to the potty. That was before I had gotten my independence with a power chair. I even worried that, by being AT THE GAME, I was embarrassing my son! But, I got over it! Not only did I sit there, in my wheelchair, I had the nerve to try and cheer the team to victory! "Fight team fight, Go team go! Yeah Bears!" I believe they won that night, but I'm not sure, and that's just the point! I don't really remember if they won or loss the game. What I remember is after the game, on the way home, us talking with our son, who was sitting in the back seat of the car. Telling him, "You had a great game. You really looked good out there!" Then I asked, "Did I embarrass you by being out there on the sidelines in my chair?" And him saying, "No, not at all, Mom. There are some guys who did not have one parent AT THE GAME. Let alone, one who put themselves out front, on the sideline, cheering for them!"
So, on days when having MS is kicking my butt! Or on days, when MS is a struggle and takes major effort, I think about this:
I may not be able to hang with the crowd. I might even be alone on the sidelines of the field. But, I am AT THE GAME, and I'm cheering my team on to victory from the sidelines!
So, let me encourage you! Do whatever you can to the best of your ability. The reward is, someday you will have sweet MEMORIES, that you did not miss being AT THE GAME!

HELP FOR THE CAREGIVER

2010-07-21T13:47:00.000-07:00

Purchase Online Here

What a great read! This book is a candid look at the affects of Multiple Sclerosis from the Caregivers point of view. But most of all it is a great look at a couples adaptation to life's hurdles as a team. I have been blessed to have a great partner in this fight. But, how do you manage living with MS whether you are alone or with a caring partner?
You start by learning everything you can about the disease and the resources that are available to those with the disability. As well as things that will empower the Caregivers, whom are as affected by the disease as the patient. Fear of the unknown can be as disabling as the disease itself.
You can save yourself some time if you read about the experiences of others with MS and apply those techniques that works for you. Think of it as part of your medical treatment. You will become capable of asking questions of your physician about treatment and able to explain relevant symptoms. For example, from reading this book I learned that sensitivity to salt was a MS trait also. Now I know I should mention this to my neurologist as well as my family doctor. This tip is just one of many in the book.
A surprise feature of this book is the journal page after each chapter, to add your personal notes.
Please enjoy this find and be sure to post your thought here on MS Scars to Stars.

'Multiple Sclerosis Headline News'

2010-07-01T13:33:00.000-07:00

'Multiple Sclerosis Headline News'

MS SCARS 2 STARS AND A DOZEN EGGS

2010-06-22T09:27:00.000-07:00

On average our MS Self Help Group Meeting has about 12 people in attendance, which is the typical size of most groups. Like a dozen eggs. The members usually are Patients and Caregivers that are looking for support in coping with this illness. As an attendee at your first group meeting you may feel as fragile as an egg, and if you were recently diagnosed with Multiple Sclerosis, you may feel more like Humpty Dumpty! I would like to blog the following topic: How do you really feel about MS Self Help Group meetings?

What would help make a MS Self Help Group more exciting and appealing ? When you read the phrase MS Self Help Group, what thought first comes to mind? What are some of your concerns on attending a Self Help Group meeting? Would you like to only attend meetings with people who have similar abilities or disabilities? Are you comfortable sharing with Caregivers attending your SHG (Self Help Group) meeting or would you prefer MS patients only? Do you fear sharing your diagnosis in the SHG because of a lack of privacy? Would you rather SHG meetings were held by a professional speaker on an educational format only? What do you think of groups that restrict their attendance by gender or age?
In researching the story of Humpty Dumpty for this blog I found that the original Humpty Dumpty was actually a large cannon that was sat on top of a wall, not a obese person portrayed as a cartoon egg that topples to the ground and is shattered! In fact, the fortress wall the cannon was seated upon was toppled and the protection and advantage that the cannon afforded in battle was lost. The historical event of the siege of the city of Colchester in 1648, is fact. Read the entire story. But as the poem goes, 'All the King's horses and all the King's men couldn't put Humpty together again!' No one was able to get the cannon back on top of another part of the wall. Likewise the uniqueness of a Self Help Group is You gather information and You gain understanding about coping with Ms from what others share, Medical Professionals as well as other Patients. We are responsible for our own well being, that's why the meetings are called "Self Help" Group. We may have broken Nerve Axons, see Myoptumhealth.com, but we are not cracked and broken fragile eggs!
Thanks for sharing by posting your response on this blog.

Check out my @constantcontact newsletter

2010-06-12T07:32:00.000-07:00

Check out my @constantcontact newsletter

Look for our LIVE Webinar announcement coming soon!

YES WE CAN

2010-05-19T10:24:00.000-07:00

My first experience at camp - Camp Can Do in Burton, Texas this past weekend was a great experience that I will not soon forget. The weekend adventure for those suffering from the effects of MS was an uplifting experience to recharge and encourage us with a get-a-way from the usual day to day. It lifted our morale by giving us a sense of independenc and confidence that (with some assistance) we can do it! A good time was had by all in spite of MS.

For me this was also a birthday weekend and I was determine to do something that I had never done before, a bucket list sort of thing, and I did. One such thing was shooting targets with paint-balls! (Shown Above)

And yes, we do know how to party! There are many other pictures of the event. I will post the link as soon as it is available.

MS or ADD?

2010-04-10T16:14:00.000-07:00

Maybe both and the same. I have finally found a name for my condition of being frustrated with everything! I think that the effects of MS in my life has caused somewhat of an Attention Deficit Disorder minus the Hyperactivity.

According to the DSM-IV (the Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition) some common symptoms of ADHD include: often fails to give close attention to details or makes careless mistakes; often has difficulty sustaining attention to tasks; often does not seem to listen when spoken to directly; often fails to follow instructions carefully and completely; losing or forgetting important things; feeling restless, often fidgeting with hands or feet, or squirming; running or climbing excessively; often talks excessively; often blurts out answers before hearing the whole question; often has difficulty awaiting turn.

Please keep in mind that the exact nature and severity of AD/HD symptoms varies from person to person. Approximately one-third of people with AD/HD do not have the hyperactive or overactive behavior component, for example

Well, I guess that's why they call it Multiple Sclerosis. Please visit this site Everyday Challenges to view a great video

Did You Miss Me?

2010-03-11T11:16:00.000-08:00

So, where have I been? I have been side tracked! Have you ever had a plan and shared it with someone and they use their influence to persuade you to do what they think is best for you?
Well boys and girls I have had that happen to me, it's called "side tracked." The only thing that saves me from totally abandoning my plans is that I have been down this road before, and it looks familiar.
I was told, "Since you are obviously feeling well enough to try Yoga, why don't you go into Rehab, after all this is a specialized program for people with your condition and illness."
Well, I am willing to try both; I just don't think I am physically able to do both. I thought I had it all figured out. I would take some physical therapy lessons from a qualified trainer and therapist along with a weekly Yoga lesson and see if I felt better. I like my plan. I think that it will work for me. So, I'm back to working my plan. And even though doctors do know best, if I don't follow the regiment that they have planned for me then the results will be minimal at best. Not to mention that the cost for rehabilitation treatment is far greater than what I am trying on my own. Even though, I am blessed to have the insurance coverage, I could very easily and quickly use my entire annual allowance for therapy in a hospital or clinic. And with MS you never know what might happen. You may need rehab treatments due to an emergency Exacerbation of MS. So, I'm sticking with the original plan for now.
I also have grown to realize that I need to work on my independence for transportation to my lesson appointments. This will be a side topic I will report on in my journey. I think I'll call it "The Get Around". So, look for those blogs. As always your comments on any of my posts are welcome.
I'm back!

The Perfect Ending!

2010-02-15T10:07:00.000-08:00

My report on my first time Dahn Yoga class experience is almost at the end. But I did promise to be candid in my experience and express my thoughts about the event, and I want to try to convey the support that the other participants gave to help each other. This was very clear to me when I attempted to get off the floor, but more about that later. I was of course unable to stand on my own and I was sitting in the middle of the floor. So with the help of my husband and others I was pulled to the nearest wall for support. As I sat with my “back against the wall” I thought to myself; that is what the phrase means, “Got your back against the wall.” It was very supportive and solidly reassuring, although I knew I wasn’t going anywhere without help. Then strangely, everyone else sat down on the floor in a circle around me. We were asked if we would like some hot tea by our instructor. After serving us all a cup of tea, she sat on the floor and giving each person her attention asked each of us individually “How did you feel about the exercises?” How has the routine helped you? Everyone shared their thoughts in a group therapy style atmosphere quietly sharing their accomplishments. After, the tea and sharing was finished everyone was ready to leave the session.
Now it was time for me to stand up, everyone offered eagerly to assist me. But the smallest lady in the class affirmed she could help me stand very confidently. I thought, sure this attempt would be human folly. After all I had warned them that they would need a crane to get me off the floor. But, she looked me over and asked if I was ready, and before I could reply with “I don’t think you can…” I was standing. That was as big of a highlight to my day as getting on the floor. I am by no means recommending this be tried by everyone because, she later stated that she had worked in a hospital and had some formal training and experience with people who have trouble walking and standing.
The class was over and I felt great, lots of energy but relaxed! I highly recommend trying Dahn Yoga. I will continue the training and will report with another blog on my next visit.
The End

I'm On The Floor?

2010-02-09T17:36:00.000-08:00

I can’ believe I’m on the floor! Trust me if I can do it you can do it. My legs have very little movement and are very weak at this time. But, the standing exercises helped me to be able to sit up-right on the floor. Stiffness in my legs would not allow me to get in a relaxed Lotus position. So, I moved myself as close as I could without falling over. My body was working hard to do just the basic position of sitting and breathing. I could do very little of the stretching but I reached out my hand and visualized myself doing the poises. I was so excited just to be able to sit on the matted floor. (The entire floor of the room is one large comfortable mat). Then we were told to lie back on our backs. I was sure that my back would hurt but to my surprise it did not.
The relaxation part of the routine was starting. The sound of the music is more noticeable. We are instructed to close our eyes and concentrate on our deep breathing, in through the noise and out through the mouth making a ah sound with each exhale. I later found out these exercises in breathing is a part of the Dahn Yoga routine basics called Jung-Choong Breathing. Everything is focused on moving energy.
I have another great reading suggestion called “Dahn Yoga Basics, by Dahn Yoga Education” Dahn Yoga Education is an institution which researches and develops educational material for Dahn Yoga practitioners with the help and support of Dahn Yoga professionals.
Back to the relaxation – now your mind work and visualization starts in earnest, because you may be tempted to drift off to sleep. But this was my first experience. Now that I know more about the practice, I’m sure I will get more out of the relaxation exercises.
There is one more thing I will share about this part of the experience and that is a pressure is applied to the arms and chest while in this relaxed state by the instructor. I know now that this was done to improve the flow of the Ki or Chi.
I am sure I will learn more about this on my next visit to class.
In my next blog, I’ll explain getting off the floor and what happened next on my first visit.

Brain Wave Vibration

2010-02-06T07:29:00.000-08:00

BRAIN WAVE VIBRATION - what is it and what has it got to do with Dahn Yoga? OK, here goes my interpretation of what it means; “Shake it off!”
This might seem over simplified but, in the African American culture we have heard this before from our elders. When you fell or injured yourself playing around as a child, you were told to “shake it off”, and it worked.
The intricacy of the tapping and bouncing and shaking in Dahn Yoga is much more refined then what I have compared it, and far more effective. This may be “the best part” of the exercise routine.
I am currently reading Brain Wave Vibration by Llchi Lee the originator of Dahn Yoga, and it refers to “Getting Back into the Rhythm of a Happy, Healthy Life.” As I mentioned before in an earlier blog the experience is like a dance and the tapping is like the sound of a drum very rhythmic. In our class soft music was played also. The music stimulates in a different way and is very relaxing. Some people may fall asleep listening to the music alone, and that’s OK if you do, your body needs rest. But, if you fall asleep, you would miss out on another great part of the experience; the breathing and stretching.
Some of the exercises required my getting on the floor, that sounds easy, but I had not been on the floor (on purpose) in over 10 years. I had experience in falling when I was alone and I could not get up. You know the commercial “I’ve fallen and I can’t get up!” well that was me. So, for me it was a major breakthrough just to trust myself to get on the floor. I kept telling everyone they would need a crane to get me up, but they encouraged me to try anyway. Which brings up another great thing I noticed about the class and that is everybody encourages the other person to try and move the best way they can.
Well I’ll tell you what happened once I got down on the floor next time.
You can purchase the book I’m reading “Brain Wave Vibration” by Llchi Lee, in the MSLSC Store on our website through Amazon or here on this blog!
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DAHN YOGA - HOW DOES IT FEEL?

2010-02-03T15:58:00.000-08:00

We started by bending our knees slightly, tucking in our tail bone and relaxing the shoulders then bouncing from the waste, shaking our arms gently. The routine got started with tapping to a count like a drum the lower abdomen which stimulates the digestive system. We faced each other in a circle. The circle grows as people enter in the group taking their turn at counting the repetitions as we tap. In a strange way this helps your mind to relax and enjoy the sound of the cadence as each person calls out numbers from 1 to 10, one person after another, taking their turn, 1 through 10, or 20, 30, 40, keeping up with the total taps. Before you knew it you have done 100 or more repetitions. Afterwards you rub you stomach in a clockwise motion. The next routine focused on the same lower digestion system, by contracting and releasing the lower abdomen in and out. You must do this while maintaining the posture and taking your turn at keeping the count. The best thing about group exercises is the feeling that you are a part of the team, like a dance.
I also soon realized that I would become aware of where my internal organs were and how to energize them to clean out the toxins. This is a very open and honest approach to exercising. I can say I did feel energized.
The next part of the routine involves stretching to relieve stress and tension. But right now, it’s the end of the day, and that sounds good to me. So I’ll finish the report tomorrow. The best part is yet to come.
I found out that the creator of Dahn Yoga was a stroke survivor and used these exercises for his healing and recovery.
Again please visit the MSLSC Store Books and DVD’s on our website to find the Dahn Yoda and MS DVD. You can get started with the lessons, they are similar to what I experienced.

MY FIRST DAHN YOGA EXPERIENCE

2010-02-02T15:50:00.000-08:00

Most Yoga focuses on the physical and more complicated movement and poises. Dahn Yoga is unique type of yoga that features simple exercises for the conditioning of the body and mind, starting with the core, suitable for people of all body types and ages.
My first experience with Dahn Yoga was a video I found online called Dahn Yoga for Multiple Sclerosis and Similar Conditions. I thought this would be a great tool to have in resources for my Self Help Group meetings. After briefly viewing some of the video in one of our meetings, a group member said she had been to a local gym and enjoyed it very much. I contacted the instructor and scheduled a visit to our support group.
After a great demonstration by instructor Lee, I wanted to experience a full lesson. So, I scheduled a visit and attended my first class with my husband. We both were familiar with the benefits of yoga and stress management so we decided to take the class together and encourage each other.
We arrived at the gym Sunday Evening dressed in workout clothing T-shirts and soft pants. In the studio you must remove your shoes because the entire floor is a soft mat. The class initially was started with some simple warm up routines and learning the proper way to stand.
Dahn Yoga is simple and easy to learn. We were able to understand each movement and participate at first try. I will describe more about the rest of the session in tomorrow’s blog.

In the picture above is Master Jung Lee with 2 of her students, myself and two of our group members.

DAHN YOGA AND ME!

2010-02-01T07:23:00.000-08:00

I will chronicle my story over the next 6 weeks of the classes that I am taking with my husband at a Dahn Yoga gym here in Houston. I will start by learning about Dahn Yoga and how it works. I will post the Books and DVD’s on the website that I am reading as well as any other articles that I find on the topic of Dahn Yoga. So, please follow my journey on MS Lone Star Classified website in our News Section, Meet Up Forum and here on this Google blog “MS Scars to Stars”, Dahn Yoga and Me.
I will be very open and honest about my journey. I will also try to give 100% to the program and attempt to follow all the instructions to the best of my ability. So, you have my word that I am following the program as instructed. If I fall off the wagon or if I can not physically do some of the exercises I will make note of it as well as those things that seem to be easy and helpful. I should let you know that my physical condition is Ambulatory but just barely. I use a walker for balance, when I walk short distances. I also have Drop Foot which causes difficulty in walking. I was initially diagnosed 20 years ago with MS. I have had difficulty walking many years and have used a wheelchair since 1999 for assistance.
After each sessions I will enter a post about my experience. Our first introductory session was Sunday, January 31st. We were able to attend a Free workout class. I will describe this experience fully in my next post, after I have fully view the Dahn Yoga DVD to compare our session with others lessons.
I welcome your thought and experiences as feedback . Thanks.

Welcome to MS Scars 2 Stars

2009-08-07T10:14:00.000-07:00

Hello, I am Paula, your helper, and I will be sharing my journey with you, as we both discover how to turn our MS Scars into Stars. I was diagnosed with Multiple Sclerosis in 1989. That was the biggest day of my life and the most frightening. Although I did not know what Multiple Sclerosis was I knew from the concerned look on the doctors' face it was not good. And as so many of us when we get a diagnosis we sit on the edge of our seat waiting for the plan of treatment to make it all better. But, much to my surprise, there was no cure for my illness. This wasn't a cold or flue, it wasn't going away next week or like chicken pox leave a scar that would fade away in time. This was permanent and it was going to be with me the rest of my life in some form or another. That was a shock, to put it mildly.
So, here I am today some 20 years later. I can tell you that MS has been my sometimes very cruel constant companion. However, I have learned ways to live with MS, even as my physical condition changes. I am not just existing, but living with MS triumphantly turning my "MS Scars Into Stars!"