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You start by learning everything you can about the disease and the resources that are available to those with the disability. As well as things that will empower the Caregivers, whom are as affected by the disease as the patient. Fear of the unknown can be as disabling as the disease itself.
You can save yourself some time if you read about the experiences of others with MS and apply those techniques that works for you. Think of it as part of your medical treatment. You will become capable of asking questions of your physician about treatment and able to explain relevant symptoms. For example, from reading this book I learned that sensitivity to salt was a MS trait also. Now I know I should mention this to my neurologist as well as my family doctor. This tip is just one of many in the book.
A surprise feature of this book is the journal page after each chapter, to add your personal notes.
Please enjoy this find and be sure to post your thought here on MS Scars to Stars.