HELP FOR THE CAREGIVER

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What a great read! This book is a candid look at the affects of Multiple Sclerosis from the Caregivers point of view. But most of all it is a great look at a couples adaptation to life's hurdles as a team. I have been blessed to have a great partner in this fight. But, how do you manage living with MS whether you are alone or with a caring partner?
You start by learning everything you can about the disease and the resources that are available to those with the disability. As well as things that will empower the Caregivers, whom are as affected by the disease as the patient. Fear of the unknown can be as disabling as the disease itself.
You can save yourself some time if you read about the experiences of others with MS and apply those techniques that works for you. Think of it as part of your medical treatment. You will become capable of asking questions of your physician about treatment and able to explain relevant symptoms. For example, from reading this book I learned that sensitivity to salt was a MS trait also. Now I know I should mention this to my neurologist as well as my family doctor. This tip is just one of many in the book.
A surprise feature of this book is the journal page after each chapter, to add your personal notes.
Please enjoy this find and be sure to post your thought here on MS Scars to Stars.

'Multiple Sclerosis Headline News'

'Multiple Sclerosis Headline News'

MS SCARS 2 STARS AND A DOZEN EGGS

On average our MS Self Help Group Meeting has about 12 people in attendance, which is the typical size of most groups. Like a dozen eggs. The members usually are Patients and Caregivers that are looking for support in coping with this illness. As an attendee at your first group meeting you may feel as fragile as an egg, and if you were recently diagnosed with Multiple Sclerosis, you may feel more like Humpty Dumpty! I would like to blog the following topic: How do you really feel about MS Self Help Group meetings?

What would help make a MS Self Help Group more exciting and appealing ? When you read the phrase MS Self Help Group, what thought first comes to mind? What are some of your concerns on attending a Self Help Group meeting? Would you like to only attend meetings with people who have similar abilities or disabilities? Are you comfortable sharing with Caregivers attending your SHG (Self Help Group) meeting or would you prefer MS patients only? Do you fear sharing your diagnosis in the SHG because of a lack of privacy? Would you rather SHG meetings were held by a professional speaker on an educational format only? What do you think of groups that restrict their attendance by gender or age? 
In researching the story of Humpty Dumpty for this blog I found that the original Humpty Dumpty was actually a large cannon that was sat on top of a wall, not a obese person portrayed as a cartoon egg that topples to the ground and is shattered! In fact, the fortress wall the cannon was seated upon was toppled and the protection and advantage that the cannon afforded in battle was lost. The historical event of the siege of the city of Colchester in 1648, is fact. Read the entire story. But as the poem goes, 'All the King's horses and all the King's men couldn't put Humpty together again!'  No one was able to get the cannon back on top of another part of the wall. Likewise the uniqueness of a Self Help Group is You gather information and You gain understanding about coping with Ms from what others share, Medical Professionals as well as other Patients. We are responsible for our own well being, that's why the meetings are called "Self Help" Group. We may have broken Nerve Axons, see Myoptumhealth.com,  but we are not cracked and broken fragile eggs!
Thanks for sharing by posting your response on this blog.