MUST READ BOOK
Find the Upside of the Down Times:
How to Turn Your Worst Experiences Into Your Best Opportunities
"I enjoyed this book tremendously. It grabbed me from the first chapter and got me to think in ways that have changed my life for the better. We all have different sides of life that we have to deal with, whether having a illness, being a caregiver, or a spouse or corporate employee. Your book touches others in all these areas because you share so many different sides of yourself. I know your book will be a great help to a lot of people. My husband's got to read this."
Paula Joiner, Editor of the MS Lone Star Classifieds
"TURNING THOSE MS SCARS INTO STARS"
In relapsing-remitting MS, their is significant recovery as the inflammation dies down. Special maintenance cells called glial cells are responsible for the repair of the damaged nerves. One type of glial cell, called an oligodendrocyte, lays down new myelin and another type, called an astrocyte lays down SCAR tissue.
A STAR is defined as a heavenly body, champion, headliner or a virtuoso. Another definition of a Star is defined as a network whose components are connected to a hub.
My faith in God is my connection and that is how I am "Turning Those MS Scars Into Stars." I am striving to experience the challenge of living with MS as a Blessing, an opportunity to grow in compassion, patience, grace, and love, all of which are blessings - Multiple Blessings Not Multiple Sclerosis!
Monday, August 8, 2011
Monday, August 1, 2011
Water - Not Just For Drinking
Remember Hot Air Raises
Foods - That are not heavy or hearty
Keep lotions or body creams in the refrigerator
If you don't have air-conditioning, arrange to spend at least parts of the day in a shopping mall, public library, movie theater, or other public space that is cool. Many cities have cooling centers that are open to the public on sweltering days. The indoor play areas at McDonalds are great for small children.
Finally stay in the shade and wear light colored natural fiber clothing.
You may have other tips that you would like to share. Please visit our Forum "Whew It's Hot" to leave your favorite tips. Keep cool!
Monday, June 13, 2011
The fear of flying for some is very real and difficult if not impossible but, overcoming the fear of being in a situation where you are unable to take care of yourself takes guts. I admire this lady's resolve that at her age and condition nothing was going to stop her from spending time with family.
THINK ABOUT IT.
Thursday, May 5, 2011
Here are some helpful tips if you have not flown since MS affected your mobility:
Tips on booking a flight with airlines
If you book your flights online; first check carefully for online booking "Special Needs" registration forms. This is a check list of your needs and ability. The following are just a few examples:
- Are you in a wheelchair?
- Are you visually or hearing impaired?
- Will you need assistance boarding the plane?
If you do not feel confident that the form addressed your specific needs, call the airline reservations and ask for assistance in filling out the form or making additional notations. Some airlines charge additional for booking the flight for you, verify that you are not being charged for this assistance. Let the airline's Flight-Reservationist know you will book your flight online, however, you want to confirm the “special needs” accommodations are available and will appear on your ticket.
(Special note: The Airline Flight-reservationists are professionals and if you are courteous, they can be very helpful and informative with additional information about the airline and the airport.)
Tips on Airports
If you are traveling alone, it is a good idea to have you your tickets with you in an accessible location on you when you arrive at the airport. If you are unfamiliar with the airport get directions from your airline or airport for the terminal, departing locations, and/or drop-off.
If you are driving locate parking and shuttle transportation from parking lot to your terminal. Remember, you have to handle you luggage during this stage. I would recommend a drop off at the departure for your airline. This is sometimes conveniently located at curbside where the Skycap can assist you with your needs. (Hint: Have cash for tips) Some airlines offer curbside check-in at some airports.
Good Skycaps can set the tone for your flight. (At this point, if you are in a wheelchair or if you need one, ask for the things you need to make your flight as comfortable as possible. The Skycap knows how to get you through baggage and wheelchair/walker check-in, security check and to terminal loading station quickly. (Remember, your tickets have the notation, SPECIAL NEEDS)
Planning ahead when you have a disability like MS
This is the most important part of the process. Some of the things to remember at this stage are as follows:
- Do you need medication to fly due to fear of flying? If so how does that medication affect your cognitive abilities and mobility? Also, it would be a wise choice to travel with a companion if you do take medication.
- What time is your flight? Booking flights at rush hour is not a good idea. However, soon after the peak times are the best times to book, airport workers have more time to assist you.
- How are you dressed? Everyone is aware of airport security checks and luggage restrictions. But if you are not, you can find this information online under airport security guidelines. Here is a link to a helpful site - http://www.ifly.com/airport-security
- Bladder control issues: Talk with you doctor and experiment or rehearse with using various kinds of products so that you will fill comfortable for the length of time needed to reach your destination or to be able to access bathrooms.
- Many people worry about traveling with medication that needs to be kept cold or cool. There are ice packs that are made for this purpose. Check with your pharmacy. (Pack it in your luggage or pre-check with security if you use a carry-on only.
- Airport transport between terminals on connecting flights can be challenging. But if you are flying on a budget can be a necessity. So, when you are booking your flight – check airport for terminal locations and transport assistance. A slightly longer layover may be less stressful. (Note: Airport transport worker are very helpful in getting you on and off the shuttle vehicle. As well as in and out of the wheelchair.)
- Once you reach your destination and you have claimed your baggage, again look for the Skycap of Curbside Assistant. They may be harder to find leaving the airport. So, make sure to request assistance as soon as possible upon de-boarding the plane.
- If you are visiting a city alone call the City’s Chamber of Commerce Dept. or Hospitality Dept. for information on accessibility and transportation. Also, remember to check the local National Multiple Sclerosis Society office for information or tips on city.
Wednesday, April 6, 2011
Thursday, March 17, 2011
Tuesday, March 15, 2011
The National Multiple Sclerosis Society invites you to share by posting your thoughts on the
MS = Board celebrating MS Awareness Week March 14h - 20th
"People are coming together to share, educate and build awareness about what MS means to them." Read short reflections of others living with MS and be encouraged and inspired.
Please click here to participate and to do your part to help raise awareness!
Don't forget to ware orange this week!
Wednesday, January 26, 2011
Living in a healthy state of being should be the goal for each individual. A person with MS should strive to find the best level of health or wellness for their state or stage of the condition. One of the ways to achieve that goal is through our diets. We are what we eat. However, there are other components to a healthy diet, which should be address. Are you taking additional supplements with your healthy diet? According to the experts, no matter how well balanced, organic and nutritious the meal, we need additional supplements to achieve the optimum healing benefits from food without over-eating. One might argue, "I am a juicer." Great, but how many of those precious vitamins are left in the bulk fiber by-product thrown away by juicing? Also, we hear about the effects of organic vs non-organic and GM (genetically modified) Foods vs non-GMO or Raw Food materials in our diet, which also effects the nutritional value we receive from what we eat.
I am now learning more about "Transforming your health with the power of living nutrients," in the book, 'Raw Truth', by Jordan Rubin. Jordan Rubin is also, the Publisher of the magazine, 'Extraordinary Health', which can be fount in health food stores free of charge. 'Extraordinary Health' is published by Garden of Life, LLC, located on the web at http://www.gardenoflife.com. There is lots of information to digest in this magazine or should I say, for your digestion?
People with MS may not have a lot to say about how this disease will affect them but we can control what actions we will take to affect the effects of Multiple Sclerosis. This is just a little FOOD FOR THOUGHT.
Also, as always check with your neurologist before taking any supplements.
Tuesday, January 18, 2011
This takes about 2 hours from start to finish with the prep and simmer time included.
3 Boneless Skinless Chicken Breast
32 oz. Free Range Chicken Broth Low Salt
4 Tables Olive Oil
2 Knorr Chipotle Mini Cubes
1 cup Brown Rice
2 Small Shollot
3 Stalks of Celery ( 2 cups)
1 Small bag of Baby Carrots
3 Ears of Corn (cut into 6 or more pieces)
1 Green Bell Pepper
1 Red Bell Pepper
Mrs Dash Original Seasoning or Garlic
2 Roma Tomatoes
1 Large Avocado
1/2 Red Onion
Directions for Prep: In a large soup pot, saute shallots, celery, bell peppers in olive oil until translucent. Cut chicken breasts into bite size pieces and season with Mrs Dash, (I use Original). Add chicken to vegetables and cook until lightly brown and done. Next add carrots and corn. Continue to cook on medium high heat 2 - 3 minutes more. Add 32 oz chicken broth and Chipotle seasoning cubes, simmer for 35 - 40 minutes.
Then, add 1 cup uncooked brown rice and 2 cups additional liquid (water). Simmer at high heat for additional 40 minutes or until rice is cooked.
Mince red onion and cilantro combine with cut and seeds removed tomatoes. You can chop by hand or use food processor. Cut or chop avocados into large bit size pieces or slices. Use as a garnish for each of a bowl of soup.
Hope you enjoy this recipe as much as I did creating, cooking and eating it!
Monday, January 10, 2011
The one area to watch is sugar from fruit drinks. Items like orange juice and apple juice even if they are organic, contain a lot of sugar. It is a good idea to pay close attention to the labels. A good juicer may be the solution to the problem, any suggestions? Also, I am planning to refine my diet to include more homemade gluten free breads instead of store bought products. A bread machine might make baking gluten free products somewhat easier. I have purchased a variety of gluten free grains for baking bread and cakes. They can be found in most grocery stores baking isles. Eggs have also been excluded from the MS Diet. Powdered egg substitute does work well as a replacement.
This year the exercise part of this project will be in the forefront as well. Floor exercises like simple Dahn Yoga floor stretches are great. I look forward to making progress in this area. As the year progresses there will be other new changes- I'll keep you posted.